A Familial Adenomatous Polyposis (FAP) patient education conference and its impact on patients and families
نویسندگان
چکیده
Background Individuals with familial adenomatous polyposis (FAP) require increased lifelong surveillance due to the high risk of colorectal cancer and extracolonic features. Despite the existence of well-established surveillance guidelines, studies have shown that lack of patient knowledge is a major hurdle to adherence. Patient education conferences represent an avenue for patients to obtain disease-specific information directly from experts. There is a paucity of data addressing the educational needs and characteristics of individuals who attend such conferences and the impact on their FAP-related knowledge.
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A Patient with Interstitial 5q21 Deletion, Familial Adenomatous Polyposis, Dysmorphic Features, and Profound Neurologic Dysfunction
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